WESTERN STANDARD COLUMN: Waitlist Deaths a Red Flag for Canadian Health Care

In Canada, the government essentially operates a monopoly on the healthcare services you can access.

With the exception of Quebec, Canadians are not allowed to pay for medically necessary health services or buy private health insurance to cover them. The state expects everyone to depend on it for care. What could go wrong?

Well, how about 14,000 people a year dying on waiting lists for surgery?

With this in mind, if the government wants to maintain its monopoly over the health care options available, shouldn’t accountability be paramount?
 

Obviously the answer is “yes,” but that’s not happening.

Consider the story of Jerry Dunham. The Redcliff, AB man died in June, 2020 while waiting for a pacemaker operation. Dunham waited 18 months after first feeling the symptoms of congestive heart failure until his operation was scheduled. But by the time it was his turn for surgery, the government had postponed the operation due to COVID. He died shortly afterwards, leaving behind two young children.

We know about Dunham’s story not because the government informed the public about its tragic mistake, but because Dunham’s family spoke out publicly. Time and time again, similar stories break in Canada because family members, not the government, disclose these major mistakes to the media.

Contrast this reality with what happens when private businesses make mistakes — governments often alert the media when a restaurant violates a government policy or when a worker is injured at a construction site. Imagine if the government held itself to the same standard?

The lack of accountability around waiting list deaths in Canada is why SecondStreet.org releases annual Died on a Waiting List reports. These reports cite government data — obtained by SecondStreet.org filing Freedom of Information requests nation-wide — that show the number of Canadians who died while waiting for surgery, a diagnostic scan or to see a specialist.

Last year’s report, which was released this past December, covers the period April 1, 2021 to March 31, 2022. It showed there were 13,581 waiting list deaths in Canada — covering a wide array of health services — everything from cataract procedures to cardiac cases and MRI scans.

Since that research was released, SecondStreet.org was able to release additional data.

For instance, new figures from Alberta show 48 Albertans died while waiting for surgery and 79 died waiting for a diagnostic scan. Unlike previous years, the Alberta government no longer releases details on the types of surgeries patients were waiting for at the time of their death.

In Ontario, the government disclosed 42% of the 1,417 patients who died while waiting for surgery were cataract cases. Patients would be unlikely to die from not receiving this surgery in a timely manner, but who wants to spend their final days walking around with cloudy vision? Ontario’s data did show 7% died waiting for cancer surgery and 2% died while awaiting neurosurgery.

The Winnipeg Regional Health Authority disclosed six patients died while waiting for heart surgery. Of the six patients, four had waited longer than the recommended wait time. Did long wait times contribute to any of those deaths? Again, the state does not report on such situations.

 

So what are the solutions to these problems?

First and foremost, accountability. The government should track this data carefully and disclose, like Nova Scotia does, how many patients died while waiting for potentially life saving surgery. In fact, a 2022 Leger poll commissioned by SecondStreet.org showed 66% of Canadians think provincial health ministers should have to hold a news conference each year and discuss the data publicly.

Second, real health reform could save lives and ease patient suffering. Another 2022 poll commissioned by SecondStreet.org found 62% of Canadians think our country should keep our public health care system, but allow the public to pay for surgery at private clinics if they so choose. This would not only reduce patient suffering, it would take pressure off our public system as some patients decide to pay privately.

 

To be clear, health reform is a complex topic and requires many reform options. But if we start with the two options above, we can improve accountability and outcomes for patients.

Dom Lucyk is communications director for SecondStreet.org, a Canadian think tank.

This column was originally published in The Western Standard on March 9, 2023.

 

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Prevention – reduce demand in the first place

If Canadians lived healthier lives, we could reduce demand for emergency services, orthopaedic surgeries, primary care and more. 

For instance, if you visit the Canadian Cancer Society’s website, you’ll read that “about four in ten” cancer cases are preventable. The Heart and Stroke Foundation notes that “almost 80 percent of premature heart disease and stroke can be prevented through healthy behaviours.” A similar number of Diabetes cases are also preventable. 

Many joint replacements and visits to ERs and walk-in clinics could also be avoided through healthy living. 

To be sure, not all health problems can be avoided through healthy living – everyday the system treats Canadians with genetic conditions, helps those injured in unavoidable accidents and more.  

But there is an opportunity to reduce pressure on the health care system through Canadians shifting to healthier lifestyles – better diets, more exercise, etc. 

To learn more, watch our Health Reform Now documentary (scroll up) or see this column. 

Partner with non-profits and for-profit clinics

European countries will partner with anyone who can help patients. 

It doesn’t matter if it’s a non-profit, a government entity or a private clinic. What matters is that patients receive quality treatment, in a timely manner and for a competitive price.  

In Canada, governments often delivery services using government-run hospitals instead of seeing if non-profit or private clinics could deliver the services more effectively. 

When governments have partnered with non-profit and private clinics, the results have often been quite good – Saskatchewan, Ontario and British Columbia are just a few examples of where partnerships have worked well. 

Canada should pursue more of these partnerships to reduce wait times and increase the volume of services provided to patients.  

To learn more, watch our Health Reform Now documentary (scroll up) or see the links above. 

Make cross border care more accessible

In Canada, citizens pay high taxes each year and we’re promised universal health care services in return. The problem is, wait times are often extremely long in our health system – sometimes patients have to wait years to see a specialist or receive surgery. 

If patients don’t want to wait long periods, they often have to reach into their own pocket and pay for treatment outside the province or country. 

Throughout the European Union, we also find universal health care systems. But a key difference is that EU patients have the right to go to other EU countries, pay for surgery and then be reimbursed by their home government. Reimbursements cover up to what the patient’s home government would have spent to provide the treatment locally. 

If Canada copied this approach, a patient waiting a year to get their hip operation could instead receive treatment next week in one of thousands of surgical clinics throughout the developed world. 

Governments benefit too as the patient is now back on their feet and avoiding complications that sometimes come with long wait times – meaning the government doesn’t have to treat those complications on top of the initial health problem. 

To learn more, watch our Health Reform Now documentary (scroll up) or this shorter video. 

Legalize access to non-government providers

Canada is the only country in the world that puts up barriers, or outright bans patients from paying for health services locally. 

For instance, a patient in Toronto cannot pay for a hip operation at a private clinic in Toronto. Their only option is to wait for the government to eventually provide treatment or leave the province and pay elsewhere. 

Countries with better-performing universal health care systems do not have such bans. They allow patients a choice – use the public system or pay privately for treatment. Sweden, France, Australia and more – they all allow choice. 

Why? One reason is that allowing choice means some patients will decide to pay privately. This takes pressure off the public system. For instance, in Sweden, 87% of patients use the public system, but 13% purchase private health insurance. 

Ultimately, more choice improves access for patients. 

To learn more, watch our Health Reform Now documentary (scroll up) or watch this short clip on this topic. 

Shift to funding services for patients, not bureaucracies

In Canada, most hospitals receive a cheque from the government each year and are then asked to do their best to help patients. This approach is known as “block funding”. 

Under this model, a patient walking in the door represents a drain on the hospital’s budget. Over the course of a year, hospital administrators have to make sure the budget stretches out so services are rationed. This is why you might have to wait until next year or the year after for a hip operation, knee operation, etc. 

In better-performing universal health systems, they take the opposite approach – hospitals receive money from the government each time they help a patient. If a hospital completes a knee operation, it might receive, say, $10,000. If it completes a knee operation on another patient, it receives another $10,000. 

This model incentivizes hospitals to help more patients – to help more patients with knee operations, cataract surgery, etc. This approach also incentivizes hospitals to spend money on expenses that help patients (e.g. more doctors, nurses, equipment, etc.) rather than using the money on expenses that don’t help patients (e.g. more admin staff). 

To learn more about this policy option, please watch our Health Reform Now documentary (scroll up) or see this post by MEI.